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Workshops on Clinical Trials and Advocacy Available
HDSA has developed a 45 minute workshop that provides an overview of the clinical trials process, as well as a 30 minute presentation on legislative advocacy and the HD Parity Act. HDSA will provide a speaker and take home materials. If you are planning an educational event and want to include either workshop in your program, please contact Deb Lovecky, Director of Education, Programs and Services at dlovecky@hdsa.org.

Participate in the HDSA Clinical Trials Diplomats Program
HDSA Clinical Trials Diplomats are trained volunteers who believe that clinical trials are important to advancing research, treatments, and a cure for HD. Diplomats are usually people who have participated in a clinical or observational study, who are trained to provide information, and to answer questions about clinical trials in small group settings such as support group meetings, information days at HD clinics, and small educational events hosted by the HDSA Chapter, Affiliate, or Center of Excellence.  To learn more about the Clinical Trials Diplomats program, or to become a Diplomat, please contact Deb Lovecky at Dlovecky@hdsa.org.