Huntington's Disease Society of America (HDSA)

Ohio Valley Chapter
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Clinical Trials in Ohio
 
  

2CARE (CoQ10 Phase 3)

Cincinnati, Ohio

University of Cincinnati

Maureen Gartner

513-558-0018

 

Columbus, Ohio

HDSA Center of Excellence at

Ohio State University

Allison Seward

614-688-8672

 

COHORT (Observational)

Cincinnati, Ohio

University of Cincinnati

Maureen Gartner

513-558-0018

or

Mary Beth Bialick

513-558-0018

 

Cleveland, Ohio

Cleveland Clinic

Christine Reece

216-445-9833

 

Columbus, Ohio

HDSA Center of Excellence at

Ohio State University

Allison Seward

614-688-8672

 

CREST-E (Creatine Phase 3)

Cincinnati, Ohio

University of Cincinnati/Cincinnati Children's Hospital

Maureen Gartner

513-558-0018

 

Columbus, Ohio

HDSA Center of Excellence at

Ohio State University

Allison Seward

614-688-8672


HART (ACR16/Huntexil Phase 2B)

Cincinnati, Ohio

University of Cincinnati/Cincinnati Children's Hospital

Maureen Gartner

513-558-0018

 

Columbus, Ohio

HDSA Center of Excellence at

Ohio State University

Allison Seward

614-688-8672


HORIZON (Dimebon Phase 3)

Cleveland, Ohio

Cleveland Clinic

Patricia St. Marie

216-445-3125

 

Columbus, Ohio

HDSA Center of Excellence at

Ohio State University

Allison Seward

614-688-8672

 

PREDICT (Observational)

Cleveland, Ohio

Cleveland Clinic

Christine Reece

216-445-9833

 

Workshops on Clinical Trials and Advocacy Available
HDSA has developed a 45 minute workshop that provides an overview of the clinical trials process, as well as a 30 minute presentation on legislative advocacy and the HD Parity Act. HDSA will provide a speaker and take home materials. If you are planning an educational event and want to include either workshop in your program, please contact Deb Lovecky, Director of Education, Programs and Services at dlovecky@hdsa.org.

Participate in the HDSA Clinical Trials Diplomats Program
HDSA Clinical Trials Diplomats are trained volunteers who believe that clinical trials are important to advancing research, treatments, and a cure for HD. Diplomats are usually people who have participated in a clinical or observational study, who are trained to provide information, and to answer questions about clinical trials in small group settings such as support group meetings, information days at HD clinics, and small educational events hosted by the HDSA Chapter, Affiliate, or Center of Excellence.  To learn more about the Clinical Trials Diplomats program, or to become a Diplomat, please contact Deb Lovecky at Dlovecky@hdsa.org.